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October 24, 2015

A look at some key statistics on rare diseases in the US

The global pharmaceutical industry is make huge investments in treatments for rare diseases, which once drew little interest from major drugmakers.聽 聽

October 24, 2015

Salt Lake City woman diagnosed with rare disease that caused enlarged heart during pregnancy

When 26-year-old Elisha Bowers noticed she had gained 10 pounds during her last week of pregnancy, the Salt Lake City medical assistant knew something was wrong.

October 24, 2015

Ohio family who moved to Colorado finds relief for daughter鈥檚 seizures with medical marijuana

The Ohio family who moved more than 1,000 miles away to Colorado so their daughter who suffered up to 1,000 seizures a day could be treated with medical marijuana is celebrating the toddler鈥檚 latest milestones.

October 24, 2015

Belgium, Netherlands plan joint purchase of rare disease drugs

Belgium and the Netherlands will jointly negotiate the purchase of remedies for rare diseases with pharmaceutical groups, the Belgian health ministry said on Tuesday.

October 24, 2015

Hospital staff helps high school senior with rare skin disease attend prom

A Columbus high school senior who had been bedridden for five months due to a rare and painful skin condition was able to attend her prom this year after being successfully weaned off her pain drip.

October 24, 2015

Boy raises nearly $1M with self-published book for friend with rare disease

An 8-year-old California boy has raised nearly $1 million dollars in sales of a self-published book for his friend with a rare disease.

October 24, 2015

Cancer caused by asbestos exposure due to multiple cell mutations, study finds

Asbestos is a mineral formerly used in building construction, and exposure to its fibers has been linked to a rare form of cancer called malignant mesothelioma.

October 24, 2015

11-year-old raises money to help disabled friend learn how to ride a bike

Learning to ride a bike is a rite of passage for any child.

October 24, 2015

NJ boy with terminal illness made honorary fireman, police officer

A 4-year-old New Jersey boy battling a rare, terminal disease was made an honorary fireman and police officer Thursday as hundreds from his community looked on.

October 24, 2015

Man in vegetative state for 12 years wakes up to tell remarkable story

When Martin Pistorius was 12 years old, he came down with a strange illness that caused him to lose his ability to walk, talk and make eye contact, NPR.org reported.