October 26, 2015 Simple chemical stops prion disease Mad cow, scrapie and Creutzfeld-Jakob disease are all diseases of the brain that debilitate before they kill, and have no cure, or even many good treatment options beyond supportive care.
October 26, 2015 Florida man with rare condition makes plea for size-16 foot amputation A 26-year-old man in Florida is raising money to fund the amputation of his size-16 foot— the painful result of a rare medical condition that can cause the overgrowth of bones, skin and other tissues.
October 26, 2015 Hepatitis C could be 'rare disease' in 20 years, study says Hepatitis C may become a “rare” disease in the U.S. in about 20 years, according to a new computer model
October 26, 2015 Terminally ill child receives honorary high school diploma A young Illinois boy with a rare, fatal condition has received an honorary high school diploma from a graduating class.
October 26, 2015 17-year-old girl living in ‘100-year-old body' dies A British teen who tugged at heart strings internationally after developing a rare disease that caused her body to mimic that of a 100-year-old’s has died at age 17, news.sky.com reported.
October 26, 2015 Muscular dystrophy telethon, long run by Jerry Lewis, ends on ABC The Muscular Dystrophy Association (MDA) said Friday it will end its long-standing Labor Day telethon, aired on the ABC network, to focus on more digital fundraising efforts after the success of last year's ALS Ice Bucket challenge.
October 26, 2015 Teen fighting for her life after doctors mistake rare cancer for a pulled muscle Sixteen-year-old Melissa Sutton had always been an athletic teenager.
October 26, 2015 Woman with rare disease debuts film at SXSW Lizzie Velasquez was born with a rare condition that left her teased and cyberbullied as an adult. Now, she’s made a film about her experience, which premiered at South by Southwest Saturday.
October 26, 2015 Russian volunteer for world’s first head transplant seeking funds to meet surgeon A Russian man who has agreed to undergo the world’s first head transplant is raising funds for a trip to America so he can meet the Italian surgeon who will perform the operation, Central European News (CEN) reported.
October 26, 2015 Family of NYC girl with skin-blistering condition sees hope in new drug The arrival of a newborn often prompts various child-rearing philosophies. But for parents whose child is born with a rare disease, those voices are silenced -- as was the case for Brett and Jackie Kopelan, whose daughter, Rafaella, was born with Recessive Dystrophic Epidermolysis Bullosa (RDEB).